The Ontario Neurodegenerative Disease Research Initiative (ONDRI) has released baseline data from its foundational research study of people living with neurodegenerative disease and their care partners. The data have been standardized, cleaned and curated to allow maximum utility for analysis across disease and across platform.
“5 Diseases – 8 assessments – 520 participants (plus care partners)
- 126 Alzheimer’s/mild cognitive impairment participants
- 53 Frontotemporal lobar degeneration participants
- 40 Amyotrophic Lateral Sclerosis (ALS) participants
- 140 Parkinson’s disease participants
- 161 Cerebrovascular disease participants
ONDRI research was designed to uncover cross-disease breakthroughs by having participants undergo the same 8 assessments (study protocols).
The resulting database holds promising data on disease progression and other health and lifestyle factors. This allows scientists to make exciting comparisons within diseases (e.g. across multiple assessments), and between diseases.”
The Ontario Neurodegenerative Disease Research Initiative (ONDRI) is a highly collaborative research initiative. It tackles the complexity of dementia by studying multiple neurodegenerative diseases at once.